Coincidentally, I went to see my rheumatologist today. It was time to go over my labs and to check in with him on how I am doing. I told him what I have been saying here. I've been having some good days, but have had a tendency to over do it.
Dr. Neuwelt is very encouraged by my lab work and the fact that I really do seem to be getting better. The side effects are manageable so far. He does want me to keep an eye on my mood swings, sleeplessness and nausea. I am scheduled to see him again in 8 weeks. If I continue to show this kind of progress, he is going to start weaning me off of the MTX (methotrexate). He hasn't said anything about how long I will have to stay on Benlysta. He reminded me that I need to get plenty of sleep, rest when I can, try to eliminate as much stress from my life as possible. He also reminded me that I need to keep using sunscreen and stay out of the sun as much as possible. I will never be able to play in the sun the way I did when I was little...that's just the way it is.
I have infusion #4 on Monday, May 7th. Better health is in sight!
One day at a time...
