3 weeks after #4

I wish I could say that I am feeling great on this Memorial Day weekend. Unfortunately, I have had a new symptom crop up. In addition to the nausea, headache and low energy I have almost gotten used to, I have developed extreme dizziness. I spent the entire day yesterday in bed because every time I got up I was like a pin ball bouncing off the walls and furniture as I tried not to fall down.  Is this vertigo?

At the end of the day, I was chatting online with a friend and she asked if I had tried the Epley Maneuver. The what?! She gave me a couple of links to check out. Ron and I watched a couple of You Tube videos to see how to do this maneuver to help alleviate my dizziness. We watched until we felt comfortable enough to try it. Here's the link...

http://youtu.be/7ZgUx9G0uEs

We did it twice but I was still dizzy. It was late so I just went to bed. I woke up this morning and didn't feel quite so dizzy. I was actually able to go downstairs, make coffee and carry a cup back upstairs. That's progress, so thanks, Eileen! Now if I could just find a maneuver to help me get rid of the nausea and headache.

I am getting close to the 3 month mark since starting Benlysta. It has been a mixed blessing so far. Most days my joint pain is absent. Every once in a while I wake up feeling good and have moderate energy. Lately, however, the nausea seems to be increasing and I have daily headaches. I know it's too soon to give up but I have plenty to talk to Dr. Neuwelt about next time.

Onward and upward...