Trying to stay upbeat and realistic in the face of Systemic Lupus Erythematosis and optimistic about a new treatment. Time to get healthy!
Tuesday, May 8, 2012
Infusion #4
It had been 4 weeks since my last infusion and yesterday I had Infusion #4. When I arrived at my doctor's office, there was one other patient in the infusion area and she seemed close to being finished with her treatment. I had had a good night's sleep the night before and had slept in a bit the morning.
For the last week or so I have been feeling pretty good, so I was worried about backsliding with another infusion. After the infusion was over....no nausea. I was fuzzy-headed and tired, but no nausea. I ate a very little dinner and went to bed...still no nausea.
Then I woke up this morning with a HORRIBLE headache (my eye sockets hurt) and guess what? Yes, you guessed it - I felt like I was gonna toss my cookies...all kinds of nausea. Ativan to the rescue. I was able to put in a full day at work, but it wasn't without discomfort and really low energy. Really wish I had stayed home.
Well, I'm curled up in bed now and resting. I've been trying to stay hydrated and drinking lots of water. Dinner was ginger snaps and ginger ale. I am going to be very mindful about how long the nausea lasts this time. Next infusion is scheduled for June 7th.
Lupus symptoms at the moment - hip joint pain, fatigue.
Benlysta side effects - nausea, headache
...but I'm feeling better...one day at a time...
Labels:
Benlysta,
side effects
