Saturday, September 15, 2012

Research on Lupus

Here are some interesting graphics revealing research done on different aspects of having lupus and living with the disease. I found them interesting and decided to share.

http://knowlupus.info/lupusFull.html

http://www.knowlupus.info/career/lupusFull.html

http://knowlupus.info/gender/lupusFull.html

http://www.multivu.com/mnr/53462-roper-survey-reveals-lupus-communication-gap-silent-on-true-impact

Thursday, September 13, 2012

Good-bye, Benlysta...

As much as I had hoped it would work for me, I had to come to the conclusion that Benlysta was not for me. It appears to be a viable option for many, I just don't happen to be one of them.

During my recent hospitalization, I learned a lot about myself. I found that I too willingly did everything my doctor said without questioning him. I was a terrible patient and did not advocate for myself. I should have educated myself more on the side effects of my various medications. Because I have serious concerns about the mistakes that my doctor made with my medications and care, I now have a new rheumatologist.

I have written about what happened to me in my other blog and you can find it here if you want to know the whole story -  http://queenlaurabee.blogspot.com/2012/09/only-human.html