Here are some interesting graphics revealing research done on different aspects of having lupus and living with the disease. I found them interesting and decided to share.
http://knowlupus.info/lupusFull.html
http://www.knowlupus.info/career/lupusFull.html
http://knowlupus.info/gender/lupusFull.html
http://www.multivu.com/mnr/53462-roper-survey-reveals-lupus-communication-gap-silent-on-true-impact
Trying to stay upbeat and realistic in the face of Systemic Lupus Erythematosis and optimistic about a new treatment. Time to get healthy!
Saturday, September 15, 2012
Thursday, September 13, 2012
Good-bye, Benlysta...
As much as I had hoped it would work for me, I had to come to the conclusion that Benlysta was not for me. It appears to be a viable option for many, I just don't happen to be one of them.
During my recent hospitalization, I learned a lot about myself. I found that I too willingly did everything my doctor said without questioning him. I was a terrible patient and did not advocate for myself. I should have educated myself more on the side effects of my various medications. Because I have serious concerns about the mistakes that my doctor made with my medications and care, I now have a new rheumatologist.
I have written about what happened to me in my other blog and you can find it here if you want to know the whole story - http://queenlaurabee.blogspot.com/2012/09/only-human.html
During my recent hospitalization, I learned a lot about myself. I found that I too willingly did everything my doctor said without questioning him. I was a terrible patient and did not advocate for myself. I should have educated myself more on the side effects of my various medications. Because I have serious concerns about the mistakes that my doctor made with my medications and care, I now have a new rheumatologist.
I have written about what happened to me in my other blog and you can find it here if you want to know the whole story - http://queenlaurabee.blogspot.com/2012/09/only-human.html
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Benlysta
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