Happy Easter & Passover
Used up most of my energy making lunch today. Well, truthfully, I think I used up some of today's energy yesterday. I did some shopping at the end of the day in search of goodies for my big birthday coming up and, of course, did way too much. (I used all my spoons).
Anyway, I thought it might be useful to report how I have been feeling during the last week. I had late days at work til 6 pm or a little after every day but Thursday - that didn't help my energy level. Did have some nausea last week as well. I've also noticed that I am thirsty all the time. This could also be due to Sjogren's Syndrome. I don't think I've mentioned that before. I am trying to drink more water and green tea. I have noticed some jittery-ness, as well. My hands have even been shaking. I noticed this while chopping vegetables - very weird feeling.
I saw my rheumatologist last Thursday and had a lot to tell him as well as questions to ask. I told him about the nausea so he prescribed Ativan. Hopefully, I won't need it. Questions I asked the doctor - How long before I feel better? Doc says that it may be June before we know if Benlysta is working for me. OK. How long do I stay on Benlysta if it doesn't seem to be working for me? He says that we should give it at least 6 months - maybe more as long as the side effects aren't too bad. I forgot to ask how long I will be on Benlysta after it starts working.
At the moment, I am tired, my hand are stiff and my hip joints are screaming at me. I will try to get a good night's rest before infusion #3 tomorrow. Wish me luck.
I saw my rheumatologist last Thursday and had a lot to tell him as well as questions to ask. I told him about the nausea so he prescribed Ativan. Hopefully, I won't need it. Questions I asked the doctor - How long before I feel better? Doc says that it may be June before we know if Benlysta is working for me. OK. How long do I stay on Benlysta if it doesn't seem to be working for me? He says that we should give it at least 6 months - maybe more as long as the side effects aren't too bad. I forgot to ask how long I will be on Benlysta after it starts working.
At the moment, I am tired, my hand are stiff and my hip joints are screaming at me. I will try to get a good night's rest before infusion #3 tomorrow. Wish me luck.
