I am almost afraid to say it out loud because I have felt so crappy for so long, BUT I wanted to tell you that I woke up feeling a little odd because I wasn't hurting. My hands and feet were free from pain! I still had some shoulder stiffness and pain across my lower back, but in general, I felt better. So I showered and as I got ready for the day, I did experience a wave of nausea and slight headache. Nothing too bad, though. A little jittery on the way to work so I took an Ativan (this is ok because my husband drives me). The nurse had recommended that I let it dissolve under my tongue - it is effective for me this way. So I got to work and felt ok. I was somewhat buoyed by the outpouring of love when I got to my office - it was my birthday yesterday. There were decorations, flowers, cake, more flowers, cards and gifts for me so that certainly had a positive effect on my mood!
I did "hit the wall" at about 4:15 pm. I'm tired, but not exhausted yet. I hope this is truly the beginning of some good days ahead. I'm ready to be in remission again and promise to drink lots of water, rest and be more mindful of my body's messages to me about slowing down!
Fingers crossed! Today, my lupus symptoms are present but not as active!
