Today was the end of my 9th week at home...this was by far the most difficult week I've had yet. I have tried to keep a stiff upper lip and a positive attitude, but I am so tired.
I saw my rheumatologist this week which was good. I went in with a long list of questions and concerns which he addressed one by one. The ongoing, relentless fatigue - he is scheduling me for a sleep study. He thinks it may be likely that I have sleep apnea. It wouldn't surprise me. I have always been a very shallow breather. So, this study may be scheduled by the end of next week. Let's hope. I may get to be one of those people who gets to wear one of those sexy CPAP machines to bed. I won't care as long as I GET SOME SLEEP! He would like to have the study done before starting me on B-12 shots or pills or anything else. He did adjust one of my medications and it does appear to be helping a bit.
I am also being scheduled to see an ophthalmologist. I have been having trouble with fuzzy vision - one of my medications is plaquenil (I have been taking this med for about 15 years without any problem). It may be time to try something different. He ordered more lab work and a thyroid panel. It's all about waiting for things to be scheduled and the results of the lab tests now.
In the meantime, I still have thrush. I finished a 2 week course of medication for it and I still have thrush. So today I started a new medication that will hopefully solve that problem. I have lost 25 pounds. I am eating healthy meals, but don't have much of an appetite these days. I'm sure this has something to do with my weakness. I still putter around the house, but I find it more difficult to do little things. I'm slower.
Don't get me wrong. I haven't given up. I'm just tired. It will be better next week - I'm sure of it!
